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This Thing Called Life is a podcast about acts of giving, kindness, compassion, and humanity. Host Andi Johnson, will introduce you to powerful stories about organ, eye, and tissue donation from individuals, families and front-line health care teams, whose experiences will hopefully inspire you and remind you, that while life is hard and unpredictable, it’s also beautiful. We hope this podcast serves as a catalyst for you to register to become an organ, eye, and tissue donor.
Episodes
Tuesday Oct 26, 2021
Tuesday Oct 26, 2021
During this episode of This Thing Called Life, host Andi Johnson speaks with John Mock, a salesman for a large wheelchair manufacturer. His life took a turn two years ago when his liver failed after 56 years of perfect health. It took a ridiculous set of miracles for John to get his new liver, but he did, and his story is absolutely inspiring!
Episode Highlights:
- John details his background as a traveling sales manager for a large wheelchair manufacturer.
- John discusses the moment, two years ago, when he realized that something was wrong with his liver.
- The doctors could not figure out what was going on with John’s liver because he passed all tests that they could throw at him.
- The ammonia build-up from liver failure was taking away John’s ability to focus.
- Excessive sleeping led John to the conclusion that something was definitely going wrong.
- John’s liver specialist sent him to the University of Cincinnati’s transplant program.
- MELD (Model for Endstage Liver Disease) goes from 6 (years to live) to 40 (death); John was a 24.
- After some mini-miracles, John was able to accelerate the process of getting on the transplant waiting list.
- A battery of tests and blood work stood between John and getting on the transplant list.
- Expecting a long wait to get on the list to get the tests run, a cancellation got John in for his test two days after his acceptance into the program.
- Canceling the family vacation was tough, but John had to be close enough to get to the hospital.
- John was accepted onto the transplant list and found a donor within the same day.
- Recipients have to manage their expectations because there is a chance the organ is not a good match.
- It was important for John to reach out to the family of the donor to express his gratitude and condolences.
- Only 6 weeks after his surgery, John was on a plane to his national sales meeting in Colorado.
- Relying on others for everything was incredibly humbling for John as a natural go-getter.
- 27 days after his surgery, John and his family were able to meet his donor family and they hit it off.
- The liver that John has now is not his own, but has been inside two other people along the way.
- It’s incredibly difficult to have a healthy relationship between the recipient and the donor family.
- What it was like connecting with his donor family and how hard it remains for them to this day.
- If both sides can see that through donation, it can help both sides move forward.
- The gift of life is shared between two families, two worlds really, in the case of organ donation.
- It all starts with the decision that two people do not have to die.
- You see life from a completely different perspective when you come so close to death.
- John works tirelessly as an advocate to make sure that his donor’s family would be proud.
- Hope doesn’t get people to become donors, but it is a strategy.
- Anyone can be a registered organ donor and give hope to someone in need.
3 Key Points:
- John’s life completely changed when his liver failed two years ago. Through some mini-miracles, John was able to get in front of the board of the University of Cincinnati’s transplant program.
- Organ recipients tend to question what they have done to deserve to live and why someone else had to die. The harsh reality of life sets in at some point.
- It’s incredibly humbling when your body and mind stop you from doing certain things and you are forced to rely on others to do things for you.
Resources Mentioned:
- LifeCenter (website) (Facebook) (Instagram) (YouTube) (Twitter)
- Andi Johnson (website) (LinkedIn)
- John Mock (Facebook)
- Hope is Not a Strategy - Book
- United Network for Organ Sharing (UNOS)
- University of Cincinnati Medical Center
Tuesday Oct 19, 2021
Tuesday Oct 19, 2021
Did You Know You Can Donate A Part Of Your Liver? Andi and Lincoln Ware Of WDBZ Discuss, in this episode of Community Heroes.
Lincoln Ware and Andi Johnson discuss Life Centers involvement in the community educating and advocating for those in need of a transplant. In this episode they focus on expressing gratitude for the employees of the BMV who are on the front line of creating awareness for the opportunity to become an organ, eye and tissue donor.
Community Heroes is a special extension of This Thing Called Life’s podcast. In this series we talk to community leaders, share important information about organ and tissue donation and honor those who have been instrumental in saving lives through the gift of donation.
Resources:
https://lifepassiton.org/
https://lifepassiton.org/who-we-are/leadership/
https://www.facebook.com/LifeCenterOH
513-558-5555
Americantransplantfoundation.org
Liverfoundation.org
Tuesday Oct 12, 2021
Episode 31: Kidney Disease Can Be A Silent Organ Killer, With Dr. Govil
Tuesday Oct 12, 2021
Tuesday Oct 12, 2021
During this episode of This Thing Called Life podcast, host Andi Johnson talks to Dr. Govil,who has been in health care for many years, specifically working in the area of kidneys and kidney health He is a professor of medicine at UC Health as well as Director of Transplant and Chief Section of Transplantation.
Episode Highlights:
- Dr. Govil shares has been in this field for over 20 years and he has dedicated more than 15 years of that time to take care of patients needing kidney transplants.
- Dr. Govil shares why he chose this area of medicine to practice in.
- One of Dr. Govil’s first exposures as a medical resident was with a patient who had trace protein in the urine. All of them, as residents, ignored that component of lab finding and did not realize that their finding was a world-renowned figure in diabetic kidney disease.
- One in six of the US population is at risk for kidney disease, and more importantly, one in 10 out of the US has some element of kidney disease or chronic kidney disease.
- Dr. Govil says kidney disease is very silent. You may only have pain in the kidneys when you have physical problems like kidney stones or any cyst that is hurting you.
- The only way you discover kidney disease is through the blood test and routine numbers analysis.
- Diet does play a role in making kidney disease worse or stable, but a lot of that has to be done with how we manage our primary disease, which is causing kidney disease.
- It is very difficult to ask one patient to stop eating salt because everything we eat around us is loaded with salt, and it is very difficult to break that cycle, says Dr. Govil.
- Andi asks, “Is this kidney disease more prevalent here in America, or is it more prevalent in other parts of the world?”
- There are definitely certain aspects of kidney disease that we do not understand, which means that they may have familial clustering, says Dr. Govil.
- As we progress, we now can identify certain genes that make one more prone to have kidney disease, which does not mean that everyone who has it will present with it.
- Andi asks about Dr. Govil’s experience specifically, “Do you see more of Caucasian patients? Do they seem to have more success in identifying living kidney donors? And if so, why do you think that is?”
- When we look at the transplant or people who are receiving dialysis, 1/3 of them are African American, which means that there is definitely more propensity of any disease in this group of patients than any other group.
- Dr. Govil says, “When we look at the number of people on the list compared to the people who get transplanted and then compare it to the number of people who are on dialysis, they just don't add up completely.”
- Dr. Govil clarifies the myth that kidney donation can harm a donor in the short run and in the long term.
- As per Dr. Govil, education is the key, and that is what he feels when he goes to multiple outreach clinics in the tri-state area, and he realizes a lot of these barriers are related to misinformation.
- Dr. Govil gives recommendations for keeping your kidneys healthy.
- Don't count on kidney pain as one of the symptoms because kidney pain really is not a symptom of kidney disease -that is just a mechanical problem, which could be because of a stone in the kidney or some cyst.
- Diseases are frightening in many aspects; These are things that could be prevented if we took the proper steps and proactively saw our doctors.
- Changes in organ allocation will generally increase some of the volume, but it will definitely increase the volume for certain centers to do more transplants.
- A donor that may have hepatitis is now able to give organs to the patient in need of a transplant, and then that can be treated, says Andi.
- The dialysis survival is really dismal over a period of time. So, a 10-year survival on dialysis is around 10%.
3 Key Points:
- Dr. Govil explains what leads someone to having kidney failure. We have to realize that the kidneys are affected by a lot of things that happen in our body, whether it be high blood pressure, diabetes, or any other changes that may be related to some problems happening at the level of the kidney itself.
- Kidney disease means we are in a tier of the kidney, which is a very silent process and so essentially, your kidneys really do not have to hurt and actually they do not hurt at all when you fail your kidneys over a period of time.
- If we have a healthy, balanced diet to stabilize our diabetes and high blood pressure, it will indirectly help keep our kidneys happy and healthy.
Resources Mentioned:
- LifeCenter | website | Facebook | Instagram | YouTube| Twitter
- Andi Johnson website |LinkedIn
- Organ Donation Website
- https://www.donatelife.net/nmdam/
Tuesday Oct 05, 2021
Tuesday Oct 05, 2021
It’s National BMV (DMV) Appreciation month, And We Want To Recognize Their Commitment To The Donate Life Mission In This Interview with Lincoln Ware on WDBZ
Lincoln Ware and Andi Johnson discuss Life Centers involvement in the community educating and advocating for those in need of a transplant. In this episode they focus on expressing gratitude for the employees of the BMV who are on the front line of creating awareness for the opportunity to become an organ, eye and tissue donor.
Community Heroes is a special extension of This Thing Called Life’s podcast. In this series we talk to community leaders, share important information about organ and tissue donation and honor those who have been instrumental in saving lives through the gift of donation.
Resources:
https://lifepassiton.org/
https://lifepassiton.org/who-we-are/leadership/
https://www.facebook.com/LifeCenterOH
513-558-5555